tag:blogger.com,1999:blog-43581015017646293712024-02-21T02:59:35.392-06:00One Foot in Front of the OtherThis is a blog about my life after Stevens Johnson Syndrome, a very devastating illness. I truly believe this is my purpose in life, to get the word out. This is my new life! I've trained for and completed my first half marathon and now plan to run it every year until I can no longer take another step! This is about my training, my goals, my triumphs and my failures! It really is true what they say, "life goes on!" Well, here I go!!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.comBlogger53125tag:blogger.com,1999:blog-4358101501764629371.post-44265935948482053292013-02-10T20:18:00.001-06:002013-02-10T20:18:19.512-06:00Ahhh...so good to be back!It has been forever since I have come back here. Things have changed so much and so many things have happened. I guess with everything going on, I just wasn't able to find the time or the energy to come here.<br />
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Since the last time I posted, I ran in the Fox Cities Full Marathon relay with my amazing husband, two dear friends, my incredible sister-in-law and some incredible drivers that made the day fantastic! It was a fabulous weekend with 8 Survivors. We ran in honor of Lindsay Estacio, whom we had lost to complications of SJS. It was a hard weekend, but we got through it together, as we always do!<br />
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I finished training for that very first marathon and completed it on October 7th with my bestie running partner, Deb. She has become more to me than just someone I pound the pavement with. She has become one of my best friends and a constant in my life. She makes me feel safe when there are times that I don't. She allows me to have my "crazy" days of anxiety, anger and struggles through this life I have been left with after my illness. She is a sense of calm, of security and always good for a lots of laughs! I thank God for her each and every day! <br />
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I finished my 26.2 mils in 5 hours and 21 minutes. I was tired, sore, and felt broken at the end. Until 1 mile from the finish I saw the looming building of St. Mary's Hospital. When I felt like quitting, it pushed me along once again and I closed a chapter in my life.<br />
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The following day, I was in court. Battling the doctor that misdiagnosed me and prescribed the medication that nearly killed me. The week was terrible. It happened that I ended up being on trial, not the doctor in question. My life was under a microscope and the blame was placed back on me. I lost the case, making me doubt our legal system and the ability of doctors everywhere. It saddens me to have become jaded from such an experience, but once again, I will be turning to running to get me through.<br />
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I battled an IT Band injury off and on from November until now, so am just getting back to it. Starting over has proven to be very difficult, but so very much needed. I refuse to let this set back stop me from moving forward! I am pulling myself back up by my bootstraps and learning more about myself now more than ever. I have opened my own hair studio, which I never thought I would do. I have another marathon on my schedule for this year along with several relays. I am hoping this year is full of courage, hope, love and joy. Success in whatever way I can make it happen and time with my family and friends. It is about overcoming fears and maybe, just maybe, tackling a new challenge. It's about having fun! It's about being happy and in order to do that, I will be putting one foot in front of the other. Won't you join me??<br />
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<br />sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-15865973531575262572012-08-17T11:21:00.001-05:002012-08-17T11:21:24.052-05:00Every Month should be SJS Awareness MonthFirst of all, thank you Governor Walker for Proclaiming August as Stevens Johnson Syndrome Awareness Month in the State of Wisconsin!!!! Thank you for recognizing the need for education and awareness. <br />
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Believe it or not, the 3rd Annual SJS Weekend is just around the corner and I am looking forward to spending time with fellow Survivors from around the world. All of us together, spreading the news of SJS and what it can do, is never wrong. There will be new faces this year and familiar ones as well. Survivors of all ages and their families as well. It's a weekend of laughter, of "tears", of strength and courage. We come together to support each other, to build each other up and to help save lives with the power of knowledge. Knowledge that most of us were never armed with. Don't be confused by warning labels on medications or the empty words of doctors telling you that it is a "rare" illness, that it's a rash, that it is not likely to happen to you. Maybe it isn't. Maybe it won't happen to you, but it may happen to someone you love or someone you know.<br />
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There is no cure for Stevens Johnson Syndrome or TENs. There is no way to know how severe it will be for each person. It is different for everyone. Some of us had the rash, some of us blistered, some of us lost skin, some of us lost our vision, some of us can't cry, some of us lost finger and toe nails, some of us will never be able to have children, some of us can't even sit in the sun or handle bright lights, some of us now have COPD, some of us died, some of us survived for a few years and then died because of complications due to SJS, most of us live in constant fear of it happening again, and some of us have had it happen. <br />
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There is no opinion about any of that. All of that is FACT! I may not know all of the scientific reasons for why this happens or how it happens, but I DO know that it happened to ME! I DO know that I live with this every day. Not some days, EVERY DAY! And I DO know that I am doing a pretty damn good job of living my life. Along with my family and friends, I have built a new life. One from scratch, honestly. I have started from the basics and progressed to training for a full marathon. There are times that I wonder if I truly am capable of 26.2, but most of the time I know that I am. I am a Fighter, I am a Survivor, and I will finish it. The good with the bad, the things I am proud of and the things that I am not will be carried across that Finish Line. But I will NEVER let ANYONE knock me down for good. I may rise to the occasion, I may fall, but I will get back up. Of that you can be certain!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-27151157317796842672012-07-16T11:12:00.000-05:002012-07-16T11:12:09.177-05:00Tomorrow's a big day!!Now we're into the part of the training schedule that has made me a bit nervous from the first time I looked at it. 14 miles tomorrow. Ok, it's only .9 more miles than a half marathon, which I have done. No biggie, or at least it shouldn't be. But I am shaking in my Nikes a bit. The weather is still horrible and today there is a heat advisory until 9 pm tonight. Tomorrow is going to be tough on the lungs and a big mental game. Here's where the 20% physical and 80% mental comes in, right?<br />
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So, I'll keep you posted on how tomorrow's "longest run ever for me" goes! Now to hydrate and figure out how to get to bed at a decent time! Say...6:30 pm?<br />
<br />sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-48327194753084374432012-07-05T09:23:00.000-05:002012-07-05T09:36:31.281-05:00How many miles are in a marathon?<span style="background-color: black;">It's official, summer is halfway over! My dog, Toby, is horribly traumatized by last night's glorious display of our country's birthday. No, he wasn't with us at the park, but the full evening of fireworks put on by the city and fellow neighbors has me wondering if he will need medication just so he can go outside to do his business from now on. Poor thing. His constant panting and shaking and running back to the safety of the house reminds me of someone else I know. I am into full swing marathon training now and there are days that are filled with panting, nervous shakes and pulling the covers back over my head to hide from the ever lurking race day. Don't worry, Toby, I get it! </span><br />
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<span style="background-color: black;">According to the counter on my blog, I have 94 days to get ready for this thing. And so far, things have been going...yep just that...going. Following my training schedule has proven to be a bit more difficult than I had originally thought. Three nights a week at the baseball diamond for my boys' games, volunteering to take on the responsibility of the concession stand, working 3 evenings a week at the salon and the unbelievable heat we have had in Wisconsin this year has only added to the difficulty of training for something of this magnitude.</span><br />
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<span style="background-color: black;">My running partner, Deb, and I have also each had some physical setbacks. We have completed 2 half marathons together and have struggled with each one due to the extreme heat and humidity, not to mention the unbelievable amounts of hills in the Fort Atkinson race. Jeez! Oh, and we finished Green Bay this year not knowing that it had been cancelled due to the amount of runners needing medical attention along the course. We knew the heat was bad, but no one had told us that the race had been cancelled a mere 7 minutes prior to us crossing the finish line, so, as Forrest Gump would say, we just kept running. Although our times did not count that day, we knew what we had conquered on that course. </span><br />
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<span style="background-color: black;">Deb had a serious scare with a bronchial spasm that brought both of us to tears and she has had it happen a few more times. I am dealing with runner's knee in my left and an achilles tendon issue in my right ankle. None of these things would stop us from running at this point. Marathon training brings on a laundry list of issues that you need to deal with as you progress in miles. People bruise and lose toenails, ice packs are a common theme and resting on a running day will mess with your head something fierce. It's just the nature of the beast. Without all of these things, running a marathon would mean nothing and everyone would be doing it. </span><br />
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<span style="background-color: black;">Our long run this week was a 12 miler. So we have a long way to go before we hit those really scary numbers like 17, 18, 19 or the big whopper 20! And then, once we do the 20 miles, on race day we still have 6.2 more miles to go. Just an easy 10k, right?</span><br />
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<span style="background-color: black;">My friend, Jenny, asked me this week on the long run if I ever thought I would be running a marathon. Jenny was there cheering me on the day I finished my first sprint triathlon, and I thought for sure I might die then! But 7 years later, I have survived TENs and have 5 half marathons under my belt. I told her that I decided to run those 26.2 miles to push my body past the point that I ever thought it would be able to go just to prove to myself that I am no longer sick. I am no longer teetering on the edge of having a pulse and no longer breathing. Because, honestly, that is what scares me the most some days. I was just too close to that edge. One misstep, and I would have missed those baseball games, those fireworks, those moments with my husband and children that I deserve to have. I would have caused them pain that no children or husband or mother or father or brother or friend should ever have to feel. This marathon is about continuing to beat an illness that has won in so many other cases, but not mine. This marathon is carrying me farther and farther away from death's door and I for one am grateful for it.</span><br />
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<span style="background-color: black;">So here I sit, resting on a scheduled run day with ice packs on both legs and a heat advisory until tomorrow night at 10 pm. My mind is racing, doubting that I will be ready. But I know that I won't be and that will be ok. Very few first timers can say that they were trained well enough for the big show. This one is for finishing, for feeling ok when it's over (because I know I'm not going to feel real great), and for being able to put that 26.2 sticker on my car. That's what this one's about. Who knows, maybe one day there will be another and that one can be for everything else.</span>sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com3tag:blogger.com,1999:blog-4358101501764629371.post-89403772016730738752012-05-17T09:15:00.002-05:002012-05-17T09:15:52.486-05:00Enjoying the JourneyIt's been nearly 1 year since I met my friend and running partner, Deb. I had always wanted to find someone to run with that was willing to continue and follow through with training schedules. Someone to hold myself accountable to if need be, someone to do races with, to have a similar pace so I didn't have to feel guilty for holding him/her back or feeling like I had to push harder to keep up, and someone who loves this sport as much or more than I do. Well, I have found that in Deb and much, much more.<br />
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This Sunday, we are running our first half marathon together. We have trained through the cold and dreary months, changed our work schedules to be able to run together, have each recovered from surgeries and/or hospitalizations, texted and emailed words of encouragement and support, gotten to know each other's families, are now in a book club together, agreed to sign up and train for our first full marathon, and then after that get matching tattoos of our 26.2 accomplishment. Nuts, right?<br />
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Yeah, maybe, but I will say that my friendship with Deb, and so many other runners that I have met in the community this past year, is more than I ever expected from this sport. For a long time, I felt very alone after my illness. Of course, I always had my SJS family that I could chat with through Facebook or even call if things were bad. But I always felt different when it was just me in my community. If Mike and I would go out, all I could think was that people were staring at my scarred skin or my prosthetic eye wondering what in the heck was wrong with me or if they could figure out which eye was real and which was fake. I was self conscious of putting tears in my eyes every few minutes and I felt as though when people heard my story, they felt pity for me. I HATED that! It's tough because you want people to know what you went through in order to educate them about the illness, but you also want to just go back to living a "normal" life and not be just a Survivor of a horrible, flesh eating disease. I wanted to be me. That's it.<br />
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So when I started at the No Boundaries Half/Full Marathon Training group through our local running store, Fleet Feet, I was amazed to find that the people who were there were incredible in their own right. Some people were losing large amounts of weight, others were running their first marathon in honor of a loved one who had battled an illness or lost that battle. People were running for themselves or for others and no matter what, they weren't giving up. I found myself drawn to their determination, pulled into their passion to train hard and finish strong. They became my friends and I am forever changed by this community. <br />
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Thanks to all of my running friends, I am as "normal" again as I will ever be. When I am with them, I am just another person who runs. They encourage me, support me, cheer me on and pick me up when I fall. They are my angels on Earth.<br />
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As for Deb, she keeps me grounded. She pushes me to my limits and has been the main reason I feel whole again. She doesn't see me as being blind in one eye, she doesn't see me with my nerve damaged feet, she doesn't care that that I have scarred skin, although she has reminded me on a few occasions to wear sunscreen. She sees me as her running partner, her friend, the idiot who thought it would be a great idea to do our first full this year! <br />
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The weather forecast for Sunday is extreme heat and lots of road construction along the route. So we'll see how we do. We have goals lined up as A, B, and C. A is to finish, B is to not end up in the medical tent and C is to just have FUN! Trust the process, enjoy the journey, right Deb? <br />
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<br />sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-4536109473629951112012-04-03T14:08:00.000-05:002012-04-03T14:08:23.253-05:00Not enough time in a day!I have said this before and I will say it again, running is one of the best things that has happened in my life! I have found a strength I never thought I had, the ability to be an athlete when I never could be when I was younger, I have made some of the dearest friends I ever could have asked for and I have been able to keep depression at bay which in turn has made me a much healthier and better person. I am so grateful and love it so much! However, there are some pitfalls to this sport and at this point, I may have fallen into a few of them.<div><br />
</div><div>My race schedule this year is bigger than it's ever been. I swore up and down I would NEVER do a full marathon, and this year I have signed up and paid for my first one ever! I must have been under the influence or completely out of my mind when that became a good idea in my head! There are numerous half marathons as well as a couple of 55+ mile relays of which I am a part of. It is all so exciting when you're planning your season of races at the beginning of the year, but when you get down to it and the training is getting heavy, it is easy for me to get bogged down with life.</div><div><br />
</div><div>I have a relay coming up in 2 week and then a half marathon in just over 6. And for some reason, I am feeling ill prepared for that half marathon. I know that I have been having a difficult time fitting in my training with my family's crazy schedule as well as my unusual work schedule. My house feels a little something like one of those hoarder shows with papers from school projects, magazines, dishes in the sink, dog toys all over the floor, folded laundry stacked in piles on the dresser, clutter on the kitchen counter, a bathroom that needs to be cleaned and floors needing to be swept. The fridge needs a good over haul, the dishwasher needs to be emptied, wedding invitations need to be responded to, grocery lists and weekly menus need to be made and there is a sticky film of maple syrup on the dining room table where each of my boys eat their meals every day. To put it in a plain and simple way, I am NOT focused!!</div><div><br />
</div><div>I can't seem to complete one task from beginning to end anymore. I start one thing, the phone rings, the dog barks, the stack of papers on the counter draws my attention away from tending to the sticky mess on the table and I am forever lost. I now have a half of a stack of papers that I have sorted with 14 more things that need to be signed and put back in the mail, a dog sleeping under my feet at the kitchen sink where the dishes have somehow multiplied and a quarter less sticky spot on my dining table, but a sticky spot none-the-less. And that is all on a day that I don't have to work! We won't even talk about what doesn't get accomplished on those days!! </div><div><br />
</div><div>How in the world am I to refocus my little world into manageable bits and pieces so that I don't go and completely lose my mind? It used to be that I would go for my scheduled run and be happier, a little more energetic and motivated, but lately that hasn't been the case at all! Now I feel like I am drowning in tasks needing to be done, unhappy family members needing more and more of me or my time, friends wondering what in the hell happened to me because they haven't seen or heard from me in weeks, and a training scheduling pointing it's long, skinny finger at me with a scowl on it's face judging me for not getting the miles in while all I want to do is point a different finger right back at it in the vertical position rather than horizontal!</div><div><br />
</div><div>Am I over trained? Am I trained enough? Am I headcase or just an every day, average, working mother of two boys with busy schedules, a husband wanting more time with his wife and a little more accomplished around the house? Is it time to back off on the miles and hit the cross training a little harder? Is it feasible or realistic to think I can do all of the events on the calendar? Am I being selfish because that's what I want to do? Am I bad wife and mother because I have focused so much time on my training in the past? Is it all just catching up to me? </div><div><br />
</div><div>I have no idea! I don't know the answer to any of those questions right now. What I do know is that I need a shower from this morning's workout! And a nap would be phenomenal, but that isn't going to happen! So I think I'll take that shower, defrost some chicken for dinner, grab a cup of coffee, and just take a deep breath! That, I know I can handle! And maybe, just maybe, I'll finish those dishes. Completing something is better than nothing, right?</div>sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-55845210243739089102012-03-30T14:55:00.002-05:002012-03-30T15:48:13.558-05:00Surf City Half MarathonSo, nearly two months after the fact, I think I might possibly have a few minutes to write about my incredible trip to San Diego, the events leading up to the trip and the footprint it has indefinitely left on my soul. I can honestly say that training for that half marathon was the most focused I have been before any event, other than maybe my first triathlon. It was the most incredible and gracious gift that I had ever been given. My coach, Rob, handed me an opportunity I didn't know how to refuse, even though my head was telling me that he was crazy for doing it and that I wasn't anything special! Why would he want to train me, fly my husband and I out to San Diego, let us stay with him and then run a half marathon with me? Little ol' me? Really? Besides, he'd never even met me!! After being there, meeting my incredible coach for the first time in person and getting to know him better and better, I still can't wrap my head around it. There are just people in this world that make you want to become a better person. They do the most selfless things and ask nothing in return and want you to believe that you are worth all of it. I know this, because Rob is one of those people! I like to believe that God has brought Rob into my life so that one day I can show someone else the grace that he has shown me. There's just no other answer.<br />
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So, the week did not start out the way we had planned! Not by a long shot! The short of it is that at the end of the previous week, I began having some problems with my bad eye. The eye that I wear the prosthetic in. I was in a lot of pain. The type of aching pain like a sinus headache, something I have never really struggled with before, and then there was this horrible swelling under my left eye as if someone had cold clocked me a good one! It was red, warm to the touch, painful and swollen for several days. The stupid thing is that I really didn't think too much of it until 4:00 am on Sunday morning when the pain woke me from a solid sleep. It was then that Mike and I made our way to the hospital.<br />
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Thinking it would be one of those, "here is an antibiotic (enter nervous tics and traumatic fear) and some pain meds, come back if it gets worse" kind of deals, but within an hour, I was being admitted. Admitted?? What?? And then I was being wheeled in for a CT scan of my head. Three IV antibiotics, pain medication that brought on intense nausea and vomiting, and a pretty scary CT scan left me with a diagnosis of Periorbital Cellulitis. Of course my first reaction was that this had something to do with FAT! Had to, right? Cellulitis sure sounds a lot like cellulite to me!! But basically, the area around my eye was infected and the fear was that the infection had traveled into the bone between my eye socket and sinuses. If that was the case, we were looking at 6-8 weeks of IV antibiotics. We wouldn't know anything for a few days when they would repeat the CT scan to see if there were any improvements.<br />
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Of course, my first words were, "Well, I have a plane to catch on Thursday and a half marathon to run on Sunday, so just make that happen!" Hmmm....I don't think that was even close to being on the radar of the three doctors who were now in charge of my care. A hospitalist, an ENT and an Infectious Disease doc. They told me I couldn't fly, then they told me I might be able to fly, but wouldn't be able to run, they told me they would have to put in a PIC line and I would have to go to a hospital in Sand Diego twice a day for IV antibiotics while I was there, then they told me an oral antibiotic just might do the trick. I had no idea what was going to happen! The thought of sunny days, warmer temperatures and those looming 13.1 miles seemed so out of reach at that point. I spent my days pushing my IV pole around the unit, visiting with friends and family and trying to stay positive. I was going to California, damn it! And I was going to run the race of a lifetime too! I had cheated death on more than one occasion, a set back of cellulite or whatever the heck this was, sure wasn't going to mess with my half marathon!<br />
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A few changes were made to my antibiotics and, of course, the fear of SJS returning took hold of my heart and mind and ran with it. I was scared and angry and hopeful all at the same time. Each and every time they would come in with a new bag of fluid, I thought this could possibly be me staring at the culprit of another bout of that terrible illness. The fear is unlike anything I have ever experienced before I got sick, but lives with me every time I have to take a medication. But after the second CT scan on that Tuesday morning, I was on my way home that afternoon with a bottle of antibiotics, steroids and the best case scenario I could have asked for. The infection seemed to be responding to the treatment and I was getting on that plane in two days!!!! <br />
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So that's what we did! Thursday afternoon, Mike and I got on the plane and within a few hours, we were shedding our jackets, driving past beaches and palm trees on our way to Rob's house! Holy crap! We were really in California!!! <br />
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So many things happened while we were there, but the reason we were there was to run the Surf City Half Marathon in Huntington Beach! The doctors had told me that they wouldn't recommend me running the race, but I wasn't in any pain, the swelling was gone and I saw no reason not to do it. So after a week of not running, the three of us went for a short two mile run to shake the cob webs out and fill our lungs with some awesome California air!<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgT3dCUhWBb7-ipo1Fwh5SND67TwiD2QLqT1_FXz2qKX7ruR0cg0Ss_ll7Wqn2iYS2aiRAvAhgwGwCDaA29m7Gx7GiCO5pj9D8v9tfUjPhlzEzWMtMreM_9CXpeLP8AOI29o9L6yTSUCeMC/s1600/saturday2miler.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgT3dCUhWBb7-ipo1Fwh5SND67TwiD2QLqT1_FXz2qKX7ruR0cg0Ss_ll7Wqn2iYS2aiRAvAhgwGwCDaA29m7Gx7GiCO5pj9D8v9tfUjPhlzEzWMtMreM_9CXpeLP8AOI29o9L6yTSUCeMC/s320/saturday2miler.jpg" width="320" /></a></div><br />
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We ran the two miles and I was feeling a bit weak. Of course, our pace was a bit quick for me, but ran along the boardwalk and I could feel the salty ocean air in my face. The Pacific was so close I just had to walk across the sand to touch it. The sun, nearly ready to set, was warm on my skin and if I could make tears, I'm sure I would have had one or two for the beauty of it all.<br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFl-OHGiIJeP5fU-bTCy_E4_s0I3Fav6ZS3HPBDSoHe9mTM4LbuW3VfTjpLfU3196Ry13HaUIm6_ewoiKbjgQB0pBS0A_mkBtt6hGM1vlzZCLjUVuy6zjR_jIPaZdjyJSuumAk3nvVbvvj/s1600/expo.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFl-OHGiIJeP5fU-bTCy_E4_s0I3Fav6ZS3HPBDSoHe9mTM4LbuW3VfTjpLfU3196Ry13HaUIm6_ewoiKbjgQB0pBS0A_mkBtt6hGM1vlzZCLjUVuy6zjR_jIPaZdjyJSuumAk3nvVbvvj/s400/expo.jpg" width="238" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Checking out the Expo with Rob.<br />
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</tbody></table><div style="text-align: left;"></div> The morning of the race was absolutely incredible!! The sun was shining, the temperatures were in the low 60's, so getting to run without three layers of clothes was incredibly liberating!! There were nearly 20,000 runners between the full and half marathon, so this was a pretty big deal!<br />
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Rob and I had talked earlier about a plan. My initial plan was to run the first 3 or 4 miles at a slower pace, about 11:00 or so. Then, after I settled in and could figure out how I was feeling, pick it up a bit and save some for the finish. My goal was to finish in 2:30:00 and feel good! That was my plan!<br />
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So when the "gun" went off for our wave, although I'm still not sure we started with the correct wave, I was doing everything I could to pull back the reigns a bit. There were so many runners that I spent a lot of time bobbing and weaving trying to stay between Mike, who was on my right, and Rob, on my left. I figured if I placed myself between these two big guys, I wouldn't end up kissing the pavement if someone cut me off on my blind side. And, as it has in the past, my plan paid off! No road rash on this girl!!! The first three miles were straight out on the Pacific Coast Highway. We would catch glimpses of the beach or Ocean on our left and it was amazing. I could see that my pace was holding steady at a 10:30. A little quick, but I was feeling so strong and holding back was difficult with this many people around, so I listened to the Forrest Gump in my head and "just kept running!" We turned to the right after mile three and ran through a residential area with a few slight hills and lots of curvy streets. The scenery was beautiful and there were lots of cheerleaders along the route. Spirits were high and at about 6 we turned back onto the PCH for another 2 miles North before hitting the turn around to bring it 5 miles back in. By this time, I was ready for that turn around. I was holding that 10:30 pace pretty well and I was beginning to wonder where the heck mile 8 was!!<br />
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We reached the turnaround and headed toward the finish line. At this point, my pace slowed and looking down at my Garmin started to become a bit of a problem for me. I could feel some frustration building as I watched my pace get closer to that 11:00. I wanted that 2:30:00 so bad, I was quite sure I could taste it. Rob helped me through some discomfort in my right leg, telling me to widen my stance and shorten my stride. It was helping. I found myself looking to the ground because I was feeling a slow and gradual incline and at mile 10, that was the last thing I wanted to tackle. Rob said it was just a bit longer before the incline leveled off, but it never did! Those darn last 5 miles were all up "hill". Again, Rob told me to look straight ahead and watch the bobbing heads in front of me, but that made it all worse! I knew we were climbing, so looking down was all I could do at that point. I was getting sore and tired. <br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeR1IRnMvv3kMrm-bONWrYE8oUWsGjfkfcJu_fwDp9-w9TDklAg3emp7Lgsk0ofPfAODuiU6pllFNp78yn3eEW8oqega-KauH5fbp6jqZZsXC6wEIKO98PHcZhIjObndDQtVueCHgnN1p0/s1600/runningwithrob.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeR1IRnMvv3kMrm-bONWrYE8oUWsGjfkfcJu_fwDp9-w9TDklAg3emp7Lgsk0ofPfAODuiU6pllFNp78yn3eEW8oqega-KauH5fbp6jqZZsXC6wEIKO98PHcZhIjObndDQtVueCHgnN1p0/s400/runningwithrob.jpg" width="238" /></a></div><br />
And then, like a bat to the forehead, it hit me! Yet again, I was in a situation where I was finding that I am so much stronger than I ever thought that I was or could be. After three days in the hospital with a very serious infection, I was thousands of miles from home running a half marathon with my incredible husband and coach! Yeah, I had run 13.1 miles before, but never feeling as strong as I was that day. Sure, I was tired and my muscles were burning, but I was going to set a new PR that day, I could feel it in every step and I knew it with every beat of my heart. Well, that and I was watching the time on my Garmin! Must have been the Prednisone! Hmmm...I don't think that is the steroid of choice, but hey, it just might have worked for me that day!<br />
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So as we neared the finish line, I savored every brief moment. Although my body was ready to stop, I didn't want any of it to be over! I had trained so hard, I had come so far and although finishing was the ultimate goal, I didn't ever want to get there. Could this be the runner's high they speak of? Or was it just that I had grown in ways that surprised even me? The simple parts of life were becoming large, palpable, taking on a life of their own? Was I truly learning to live again? Without fear, doubt, anger, anxiety even? No, not completely, but maybe with less of it than I used to. And learning to live again after nearly dying, has got to be the scariest thing I have ever done. Because now you know what you stand to lose. You are aware of all of the beautiful things around you that before you never even knew were there. And that in itself is worth living for!<br />
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We finished that race, not in 2:30:00, but in 2:25:44. We had crossed the finish line more than 4 minutes faster than my original goal and nearly 15 minutes sooner than my previous Personal Record! I had set a new PR for myself and on top of all of that, I felt AMAZING! There were no dehydration issues, no stomach pains, and other than some tired muscles, I was perfect! It was a day to celebrate for sure!<br />
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Mike and I enjoyed our trip to California so much. So many highlights from that trip! Seeing dolphins swimming in the ocean, stepping foot in the Pacific Ocean, getting to know my incredible coach, eating amazing food, setting personal bests, and continuing to learn more about myself. But one thing that I will NEVER forget is getting to meet Silver Medalist and 2009 New York City Marathon winner, Meb Keflezighi. Actually, we ate pizza with him! Oh yes we did! Meb and Rob happen to be dear friends and Rob asked Meb if he would be willing to join us for dinner. He also shared part of my story with Meb, who also came into running with an incredible story of his own, and told him of my Surf City PR. The surprising thing to Mike and I about Meb was how humble he was. He congratulated me on a great race! Ha! He congratulated me!!! Just a girl from Wisconsin who averages a 10:30 pace all for the sake of raising awareness of an illness almost no one has ever heard of. A girl who had just weeks before watched Meb win the Olympic marathon Trials on tv! I watched him in my sweats, sitting on my couch, finish 26.2 miles in 2:09:07! It was in that moment that he taught me, and I finally learned, that everyone has a personal best and that a mile is still a mile no matter how quickly you complete it! In the presence of one of the best distance runner's of all time, I believed I was a runner! I too am a runner! Thank you, Meb!<br />
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To say that California was amazing would be an understatement! California was life changing for me and maybe even for my husband. With all of the wonderful things that we were able to do, I was also reminded that he will always be my biggest supporter! He believes in me, encourages me and holds me up when need it most. What a blessed life I have!<br />
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</tbody></table>sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-21350660612041367762012-02-04T12:47:00.000-06:002012-02-04T12:47:00.103-06:00Pre-race Jitters?In order to catch you up on the most recent events, I have to tell you a bit about my last week. I had been suffering a bit with some pain under my left eye, the bad one. Nothing major, so I thought, until it swelled to a rather large and disturbing size. On Friday morning, the swelling was down and I went to work as usual. Saturday morning I met up with my relay team, Team Opus, for a get together training run after doing my own 4 miles. It had snowed the night before and it was very windy, so I found the run challenging and I was tired.<br />
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Again, didn't think much of it until later in the afternoon when the pain around my eye increased. I took the prosthetic out and rested as much as I could, went to bed that night and figured I'd be fine in the morning. Well, at about 4:00 am, I was sitting up in bed, grabbing my eye telling mike something was terribly wrong. A quick call to the Nurse On Call and we were off to the emergency room.<br />
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Two thoughts were going through my mind at this time. 1) I am leaving for California in 5 days and 2) please let them give me an antibiotic that won't kill me and send me home. A CT scan later showed that the culprit was periorbital cellulitis probably caused by a sinus infection I didn't realize I even had. I like to tahink it's because I have a strong pain threshold, but it's probably more me I was just too stupid or stubborn to think that anything was wrong. So, I was shocked to find out that oral antibiotics would not be the way to go for me at this time since the infection was pretty extensive. The doctors were concerned the infection had travelled into the bone, which needed IV antibiotics. Probably would be out of the hospital in 24 hours.<br />
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The fear I felt in that hospital is something I could probably never explain to someone who has not had the experience I had during my TENs ordeal. My anxiety was high and all I wanted to do was get out of there. My thoughts of getting to run Surf City turned hazy and I had to realize that my body just might not be able to overcome this quick enough. I had three different doctors working with me. A general hospitalist, an infectious disease specialist and an ENT. All of them were giving me different ideas as to how to treat the infection. All of them pretty much told me I wouldn't be going to California. The first round of pain medications made me horribly sick that first day. I couldn't keep anything down and the nausea was a grim reminder of the months I spent on the burn unit. I was hooked up to three different antibiotics, hoping to kill the bacteria causing all of this, yet I continuously prayed that I didn't notice any itching or the start of a rash! The fear was bigger than I was at this point.<br />
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The doctors came in, told me I would be there a few more days and that if the second CT showed that the infection had travelled, that I would be facing 6-8 weeks of IV antibiotics. The race may not be out for sure, according to one doctor. We would just have to make arrangements with a hospital in San Diego to get my IV's each day. The thought of that perked me up a little, but it sounded a tad ridiculous. On Monday, late afternoon, the ENT informed me that he didn't believe the infection had travelled and that there would be no reason for me to not go to California. Although, he didn't think it would be wise for me to run the 13.1 I had been training for since September. It all depended on the next morning's CT scan. I could either be going home and able to make Thursday's flight, or I would remain where I was until a scan came back where oral antibiotics would be sufficient.<br />
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Needless to say, sleep was the last thing on my mind and it was the longest night of my life. So many friends and family had come to visit me during those two days! I was surrounded by love, support, laughter, tears and of course, banana cream pie blizzard, Starbucks coffee, and blueberry muffins! It was all of those things that saved me from going crazy!!<br />
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Tuesday morning, they came to get me early for the CT scan. I was so releived to just get it over. Although they warn you that it will feel as though you have peed your pants, it really does cross your mind if you have!! Thank goodness, I didn't have that problem! Lol! Now, it was just a matter of waiting for the results. Waiting...waiting...waiting.<br />
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Well, I guess you can figure it out that the scan came back with marked improvement and I was out of that hospital by 12:30! Elated to be going home, my energy level was minimal and Zi knew that it was going to be tough to get everything done on time to make our flight. That, and the fact that I had yet one more setback before it was all over.<br />
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By Wednesday afternoon, I was sure that there was something wrong again. My mouth was raw and my stomach tender to the touch. I thought for sure it was the antibiotic and that I was having another asks reaction. I nearly stroked out as I drove to the walk in clinic to see yet another doctor. The thoughts of returning to the hospital crossed my mind. I had ADR. scneider on speed dial on the burn unit just ready to tell him I was coming back! That this time around, I would probably not survive the SJS and that I wanted to make sure they just let me go. Make me as comfortable as possible and let me say good bye! Oh, the crazy nutso things you think of when you have danced that closely with death! When I got to the clinic, Dr. burned came in, took one look in my mouth and informed me that it was a typical side effect from the antibiotics. All of the good and bad bacteria were being killed off and so another medication and I would be fine! Now, what pace was I planning to run that half marathon in???<br />
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Wait...WHAT? What the hell did you just say? I'm not going back to the hospital? I'm not going to die? And, hold on, I can run the half marathon??? I told you I though I was going to have a stroke, right? Well, if ever there was a time to do it, it would have been then! So I grabbed my prescription, picked my jaw up off the floor and headed out of the clinic. I was going to California!!!!!!<br />
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And so, here we are! Mike and I flew out on Thursday, just as we had planned. It is now Saturday, the morning before the race. My coach, Rob, is taking us to zhuntington Beach where we will check into our hotel and then go for a much needed run. Of course, a very short and non strenuous one, but I haven't run in a week. I need to get my head in the game and a few miles on my feet may just help with that.<br />
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The weather here is absolutely beautiful and I see God's blessings on us in everything. This is the chance of a lifetime and I am taking it!! I will be a part of 20,000 runners tomorrow and representing Team SJS all of the way out here in sunny California. I will keep you posted on the day's events and tomorrow's fabulous race!!! We're on our way, friends! We're on our way!!!!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com1tag:blogger.com,1999:blog-4358101501764629371.post-34521821353109943982012-01-17T10:24:00.001-06:002012-01-17T10:26:44.360-06:00This is My Life!So last Saturday was what I consider to be my last "long" run before the Surf City Half. I have 10 miles scheduled for this weekend's long run, but that distance no longer seems daunting to me. I have run 13 miles two weeks in a row. One week was with my husband and dog with light layers and no snow to be found, the second was a solo run with plenty of snow and ice and included frozen water bottles. Both times made me feel as though I were more than ready to knock this one out of the park!<br />
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Last week, while I was struggling to hurdle snow banks, trying to keep my fingers and face warm, and prayed that my Yak Traks would get me home safely, I tuned into a song that was blaring in my ears through my headphones. I run to music when I'm alone and so many times I have found inspiration from it. The lyrics maybe or the beat of the bass drum or the riff of a guitar solo. Music moves me, plain and simple. But at this point, 8 miles in on a very cold and probably the toughest training run of my measly career, I heard something a little different. It wasn't a song about inspiration or motivation. It wasn't a song with a hip hop beat and fast tempo. It wasn't even a more recent song, no this one has been around for awhile.<br />
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I heard the singer start out saying that "Yesterday is a wrinkle on your forehead."' I found myself nodding thinking that I used to have more wrinkles, but those were lost with my illness. Lucky me! "Yesterday is a promise that you've broken. Don't Close your eyes, don't close your eyes." "...And today is all you've got now. Yeah, and today is all you'll ever have. This is your life, are you who you want to be?" I felt the cold from the barely 20 degree temperatures reach through my many layers and goose bumps formed on my skin. I felt a shiver ripple through my body and realized it wasn't the fact that I was wet, cold and in pain that made me shiver. Instead it was the fact that I was hearing what Switchfoot was trying to convey. Was I who I wanted to be?<br />
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My head began to flip through the scrapbook in my mind. Flashes of my kids, husband, parents, and my big brother came and went. Pictures of my book club, my co workers, my SJS and running friends. Then memories from my first 5k after beating the odds. My first half marathon and last year's disappointing performance. An ugly confrontation with another Survivor about Team SJS and his belief that athletic events such as the Fox Cities Half/Full marathon are inappropriate for Stevens Johnson's Survivors. His belief that I am not doing enough and that my focus should be on "Big Pharma." It all crossed my mind and then I thought about what I was trying to accomplish on this cold day.<br />
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"Yesterday is a kid in the corner. Yesterday is dead and over. Don't close your eyes...This is your life, are you who you want to be?" I felt a smile creep across my face and I heard myself say out loud, "Yeah...I think I am." Quickly looking up to see who may possibly be around to hear me talking to myself with a stupid smile across my face, I realized I was completely alone. Which actually made me think about how crazy I might actually be! There wasn't another runner around as far as I could see!<br />
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I thought again about all of the things I have done in my life. All of the mistakes I have made, and trust me there are some big ones, the trust I have given to people who never deserved it and the pain I felt from their betrayals. My own desperate actions that have affected the ones I love and my process to make those things right again. The choices I have made to overcome my physical and emotional obstacles left behind from the illness that nearly took my life, but I wouldn't let it, and the incredible people I have now chosen to surround myself with that make me a better person just being who they are. Yes, this is MY life and I'm who I want to be!! The good and the bad, the beautiful and the ugly, I'll take it all. <br />
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So how about it? Are you who you wanna be??sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com1tag:blogger.com,1999:blog-4358101501764629371.post-63480375212107916412012-01-08T21:22:00.000-06:002012-01-08T21:22:02.420-06:00Does a PR count if you're just training?Today was absolutely unbelievable! Hours later, and I am still flying high! My husband and I started out with our dog, Toby, about 9:00 this morning. The sun was shining so bright in the sky, the temperature was about 22 degrees and there was very little wind. We had dressed in multiple layers, strapped our numerous bottles of water and G2 to our belts and shoved our pockets with Hammer Gel and then we were off!<div><br />
</div><div>I was armed with my brand new Garmin and watching the miles go up one at a time was an absolute thrill. We passed the time by talking about our once in a lifetime trip to California in less than a month. We are getting to stay with my coach and now good friend, Rob, and his beautiful daughter, Megan. Neither of us have ever been to California, other than a layover at LAX on our way to Hawaii years ago. Mike said the part he is looking forward to the most is the warm temperatures! I laughed since we still haven't had more than an inch of snow this winter. Extremely bizarre weather for Wisconsin in January. </div><div><br />
</div><div>I thought about what I was looking forward to the most on this trip. There are so many things to look forward to! Finally meeting Rob for the first time after two years of working together, getting away from the cold weather for a few days, running along the Pacific Coast Highway looking out at the ocean, spreading awareness of Stevens Johnson Syndrome by representing Team SJS among thousands of runners, or reaching my own personal goal of beating my PR from two years ago at the Fox Cities Half. I told you, there are just so many!!</div><div><br />
</div><div>I ran the most solid run I have ever run at that distance! My fears and anxieties of feeling sick on this run never crossed my mind. I just went out and ran! Mike and I talked and laughed and I enjoyed every minute we had together. He even paid me the biggest compliment he ever could have. We talked about my dream to run a full marathon this year and the questions I had about whether or not I could do it. He never paused when he said that he knew I could do it and that I had more determination than he ever did when he trained for the three that he completed. I will never forget that moment and will always be grateful that he believes in me the way that he does! Everyone needs someone that believes in them more than they do themselves, but not everyone is that blessed.</div><div><br />
</div><div>When we reached mile 11, I started to really feel it in my legs and my hips. My joints began to feel as though they were on fire. We both got a little more quiet and I concentrated hard on the task at hand. Just 2 miles to go. 2 more miles and we would be home. One foot and then the other, breathing in through my nose and out through my mouth, concentrating on my posture, not letting the fatigue take over. I thought about the other two times I had run this distance and how terrible I felt then and how good I felt now. Sure I was uncomfortable, but I was running, no walking and my stomach was not giving me any problems! </div><div><br />
</div><div>As we rounded the final corner, I looked down at my Garmin, looked up and then looked at it again! Are you kidding me?? Really?? I was killing my PR! Not by seconds, not by a few minutes. I hit 13.1 miles and realized I had done it 15 minutes faster than my PR! 15 minutes!!! I wasn't doubled over in pain and I wasn't sprinting for a bathroom either. I felt great and I felt proud! I worked hard for that moment, even though it was a training run and the only other person to share it with me was Mike. But honestly, I couldn't think of another person that would have been more proud than him!</div><div><br />
</div><div>So next week, we get to do it all again!! Another 13 mile training run on the schedule! I'm pretty sure Rob is trying to kill me, but I'll do it again. And then in 4 weeks, I'll do it again! Here we come California! Here we come!!</div>sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com1tag:blogger.com,1999:blog-4358101501764629371.post-83413846147368122672012-01-02T12:33:00.000-06:002012-01-02T12:33:55.772-06:002012 - The Greatest Year Yet?<span style="font-family: Arial, Helvetica, sans-serif;">Over the past few weeks, I have thought, off and on, about all of the amazing things in my life. I think we all do something like that around this time of year. There is a list a mile long including family, friends, my job and now that my health issues have (knock on wood) settled down a bit, it is time to be thankful that I have that again. For the past three years, surgeries, specialists, medicated eye drops, long drives and doctor's office waiting rooms have been a constant. Something that I had just figured would be a way of life for me for the rest of my years here on this planet. Luckily, I have had several months of stability. Nothing has gotten better, but nothing has worsened either. I am still able to live a fairly normal life, albeit with major changes in the way I do things, but nothing is going to stop me from doing the things I love! </span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">So it is with that in mind that I start thinking about what my goals for 2012 will be. I'm not a big resolution maker, since those seem to fall by the wayside within a few short weeks or months. Instead, I think of all of the things I would like to accomplish in the year. For me, if it is more of a task list, I seem to be more successful at it than if it is a list of things I'd like to change. A technicality maybe, but it seems to work a bit better for me.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Of course, there are several areas in my life that I would like to make task lists for, but today, I am working on my running goals for the year. The biggest goal and the one that sticks out in my mind the most is the completion of my first full marathon! Deb, a dear friend of mine, and I have decided that this is the year for us to tackle those 26.2! I have to get that sticker for my car window, that's all there is to it!!</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">The Lakefront Marathon in Milwaukee is on October 7th this year. It's the race that we both decided on and for me, there could not be a better choice! As I was looking at the route to decide if this was one I would like to spend 5 or more hours on, I could see that St. Mary's Hospital is located between miles 7 and 8. The place where I spent 3 months fighting for my life and the place where I lost so much muscle and weight that I left the hospital with a wheelchair and a walker to help me in my process of relearning how to walk and keep my balance. It's hard to believe that I was ever that sick and that I have come so far since then. Thinking back, I remember when I first started running again, that first mile on the treadmill where I felt as though I had a cinder blocks on my feet and one misstep would land me in a heap on the floor. I was so proud of the moment that I had worked up to running outside. I felt like a true runner again! I ran 2 miles in 26:46, a 13:23 pace. I felt like I was flying! Since then, I have run those 3.1 miles at a 9:56 pace. Just getting stronger!</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Running the Lakefront Marathon, no matter the time, will be a sense of completion for me. I was sick, I survived, I healed, and now I'm better than I was before I ever heard of Stevens Johnson Syndrome. It will be an emotional journey, but one well worth the ride!</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">I'm also planning to tackle 2 more half marathons, a 55 mile relay, and the Fox Cities relay for Team SJS. I know there are more that I want to do, but those are the ones I have put on my list so far. My other goal for the year is to see if I can reach 1,000 miles running. This year was a little over 600, so we'll see how close I get. </span><br />
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</span><br />
<span style="font-family: Arial, Helvetica, sans-serif;">So here is to yet another year of living life to it's fullest, conquering those fears that still linger and that self-doubt that rears it's ugly head from time to time. Here's to helping other SJS Survivors to realize their own potential and the possibility of achieving their own goals. Here's to one foot in front of the other... one day at a time!</span><br />
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</span></span>sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-68616871165186172132011-11-25T22:25:00.000-06:002011-11-25T22:25:11.961-06:00California Dreaming!I hope everyone had a fabulous Thanksgiving!! I know we sure did. Surrounded by family, amazing food and Packer football!! A win over the Lions just put the cherry on top of the sundae! I also got to run a 5 mile Turkey Trot here in my own neighborhood, so it was great!<br />
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It has been so long since I have updated my blog! So many things are happening right now it's crazy! On top of the list is that I am in the process of training once again! I am so lucky to have the opportunity to get to run in the Surf City Half Marathon on February 5, 2012 with my husband and also my running coach, Rob! Surf City is in Huntington Beach, California and runs all along the ocean! This, my friends, is a Bucket List opportunity and I am working hard to make the absolute best of my training so I can have a positive and amazing experience!<br />
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Of course, with the race being in February, that means that I will be training in the snow, ice, sleet, rain and cold of Wisconsin for the next several months. Learning how to layer and dress appropriately is always a challenge and that has been a big one so far. I have been lucky that we have only had one snowfall so far and that forced me to hit the treadmill . I was too afraid of falling, so I have some Yak Tracks on the top of my Christmas list this year.<br />
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With all of the stomach issues I have continued to have over the past two years, I have finally started moving in what we hope to be a positive direction. My coach has helped me with so much and part of that is working with Kim, a sports nutritionist. She is amazing and has shown me all of the things I have been doing wrong when I thought I was doing everything right! I never understood exactly how big of a role nutrition plays in something like running because I had never been that kind of a runner! Never thought I would run 5 miles let alone run a half marathon or quicken my pace like I have over the past couple of months that Rob has been training me. So we are working diligently on trying to get this all figured out so that I can run in California without worrying about getting sick. I write down everything I eat and categorize it, making sure I am taking in enough calories and enough of the right kind. To be honest, it can be a royal pain in the ass trying to relearn something you thought you had down pat, like eating. I mean, who doesn't know how to do that?? Apparently, I don't and so it is baby steps and a bit of a tedious task, but it will be well worth it in the end.<br />
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We plan to represent Team SJS in California amongst the thousands of runners on that Super Bowl Sunday. I will proudly wear my team shirt and run with my family and friends who have supported my every step in my heart and in my mind. Maybe I'll have the opportunity to educate some people along the way as well. But for now, I keep plugging along with every workout, speed session, yoga session, meditation and long run to keep building upon what I have regained so far. I'll try and keep this updated along the way, just in case you might be interested. Or better yet, inspired, even a little bit, to reach for something you never thought you could touch. If I can do it, anyone can!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-48810588948843111132011-10-17T16:31:00.001-05:002011-10-17T16:32:53.955-05:002011 Fox Cities Half Marathon Recap!It's been nearly a month since the Fox Cities Half Marathon and I am just getting a free moment to recap it for you! So much of it is a whirlwind of events, but I'll try and recapture as much of it as possible.<br />
<br />
It all began on Thursday afternoon when Tracy and Jaden flew in from Canada. I went to the airport and picked them up, took them to lunch, drove them around town a little and then took them to Oshkosh where they would stay with a host family for the weekend. Paula, a friend of mine from high school, was the first to jump on board to offer up her home for one of the families to stay. It was amazing to feel the support of my friends and family for what we were doing from the very beginning.<br />
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On Friday, I picked up Vicki from the airport all of the way here from South Carolina. I received text messages all day long as more and more Survivors got to their hotels and planes landed! It truly was incredible to know that all of these people were coming to the Midwestern town of Appleton, WI just to meet other people that had experienced what they had. On Friday night, Becki and her family, from Michigan, invited us all to her hotel where the kids played in the pool and the adults met for the very first time. Overwhelming doesn't begin to describe it! We sat together and talked about our eyes, about our fingernails <br />
<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3j9m7W75R5ZDmi4S9K-ejEXcqmsmc7rqD5kLI2GDWgIJmPLAHC6tYbh2Kz4A-hNxSJiDfvGgtq-sn5RfMYYZOnGVAiyVDDGp-z7WlDSB5SWmicoVcEoZObx4jx7N349IkJFyx7gOw3kp7/s1600/meeting+Lindsay.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3j9m7W75R5ZDmi4S9K-ejEXcqmsmc7rqD5kLI2GDWgIJmPLAHC6tYbh2Kz4A-hNxSJiDfvGgtq-sn5RfMYYZOnGVAiyVDDGp-z7WlDSB5SWmicoVcEoZObx4jx7N349IkJFyx7gOw3kp7/s320/meeting+Lindsay.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Meeting Lindsay Estacio for the first time!</td></tr>
</tbody></table>or lack thereof and "cried" together as it all began to sink in that we were actually all together in the same room. And it wasn't just the Survivors. Family members and friends shared in the moments as well, talking about their experiences with SJS and how they too will never be the same. We all wished for the night to go on forever, but it couldn't and we knew we had a huge weekend ahead of us! The next day was filled to the brim with more excitement as four more Survivors arrived for the festivities and a party was to begin! Oh yes, and then we had 13.1 miles to cover the following day. We were ready for the healing of the weekend to begin!<br />
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<tr><td style="text-align: center;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwIWJ0gKXfA_mdWPg4RgsRz4YdJMDMbp4mHfVNxXQj8NmSFL3c7M-f0YY9iYHh1VLC1If-ye2kneep7aZ4dB7Nt3tGY74jgT5fJVd8lEwrZsywENi0vlJOCBowfR3cQ-kgTu8NasFezzDA/s320/Friday+night.JPG" width="320" /></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: xx-small;">Vicki Lown, Becki Conway, Tracy hogan, Kendra Schmidt, Lindsay Estacio</span></td></tr>
</tbody></table>On Saturday morning, we rushed to get Tracy's son, Jaden to the start line of the 5k. This brave young man was walking the 3.1 miles by himself proudly wearing his Team SJS shirt! As Tracy and I stood at the finish line, watching for any sign of the bright blue shirt, Tracy shared with me how moving the experience of the 5k was. We were surrounded by runners, walkers, family members and friends of people who had set out to reach their own goals and complete a race that morning no matter what! I get choked up thinking about it and knowing that Jaden was walking for his very own Hero, his Mom, was something that I will never forget.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiImqSbWvw5b9coEBZR8YJvvGMDNMyPl4lys_WIskxa-frQ2AI1Hy9TAFCCUmPUm8nHi9grgo-079RUv-e9M11HP29KOSZc2g8pVc9-Yr9rcbJaW13trohhOh9TSzuRrVdLoaXsjbL8iaIT/s1600/Tracy+and+Jaden.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiImqSbWvw5b9coEBZR8YJvvGMDNMyPl4lys_WIskxa-frQ2AI1Hy9TAFCCUmPUm8nHi9grgo-079RUv-e9M11HP29KOSZc2g8pVc9-Yr9rcbJaW13trohhOh9TSzuRrVdLoaXsjbL8iaIT/s320/Tracy+and+Jaden.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Tracy and Jaden before the 5k.</td></tr>
</tbody></table>In under an hour, Jaden came through the crowd heading for that finish line! He had done it!!! All by himself and Tracy and I couldn't have been more proud. With a medal around his neck and his Mom on his arm, we headed for the car to head back to the airport. We had another special package that just might be waiting for us!!<br />
<br />
When we got to the airport, we waited only moments for Eva to get off the plane all of the way from San Francisco. I knew exactly who she was from the pictures I had seen of her. She was as sweet as she was stunning and we hugged like we had known each other for years! We loaded up her luggage and got her to her host family's home. It seemed to be a perfect fit! My friend, Amy, and her family took splendid care of Eva and shared in the celebration of the weekend as well. Eva settled in and we would meet up with her later at the pasta dinner.<br />
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Most of the rest of the day was a total blur for me. I was racing around getting things to where they needed to be along with the help of my mom, my dear friend Stacy and my husband, Mike. The banquet hall had a table to make signs and posters as well as a table of games and activities for the kids that were all donated from Fox Communities Credit Union where Stacy works. Food was catered in and we filled the room with friends, family, love and support that was intoxicating the moment you set foot in the door. Everyone talked and shared stories and learned everything they could about each other and the similarities in all they had gone through. The sound I remember the most was laughter! How could something as terrible as SJS bring about something as amazing as that? But it did, and we clung to it knowing that this was something so special that there are simply no words to describe it!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfdDHFznGuMecegYfu7L8VU21O_pjYFutY420L3rh1PZZswq-eAo_QjE0MUQnbIXBs8ocFsqrT675YmF7YntYqiiY4VK4qHvLQu2aq9mQ0pkIGzPgdzS-7ESu_CDX9DIoi00Mteh7ABtA4/s1600/The+Survivors.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfdDHFznGuMecegYfu7L8VU21O_pjYFutY420L3rh1PZZswq-eAo_QjE0MUQnbIXBs8ocFsqrT675YmF7YntYqiiY4VK4qHvLQu2aq9mQ0pkIGzPgdzS-7ESu_CDX9DIoi00Mteh7ABtA4/s400/The+Survivors.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Survivors in attendance from left to right include Catherine Walchle, Lori Lewis (Lindsay's mother), Lindsay Estacio, Eva Uhlin, Kendra Schmidt, Becki Conway, Jacob Berdyck, Vicki Lown and Tracy Hogan.</td><td class="tr-caption" style="text-align: center;"><br />
</td></tr>
</tbody></table>Later in the evening, I was pleasantly surprised as a young man walked up to me. Someone I had never seen before, but for some reason he looked familiar to me. The story goes like this. Months back, I had received a friend request on FaceBook by a man who lived in Waukesha, a city near Milwaukee that I had attended college in. We didn't have any friends in common, but I friended him anyway thinking that we must have someone in common. He ordered several Team SJS shirts, and I was amazed at how supportive he was. I thought it was great! Well, come to find out, the man that had walked into the room along with his friend, was Dustyn Rynders and he shared with me that he too was an SJS Survivor! He had been sick when he was only 2 years old and I was blown away!! Not only that, but embarrassed as hell that I had never made the connection! So, instead of having 8 Survivors there that weekend, we had 9!!! Dustyn and his friend were running the half marathon on Sunday.<br />
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That night, Eva, Vicki and Tracy came to our house and we got all of our things together for the race. I finally had a chance to sit and talk to them about their experiences and I was so glad to have the opportunity to do so. I learned so much about each of them and knew that I was not alone in my own daily struggles with SJS. The healing continued.<br />
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At 4:30 Sunday morning, I awoke to a horrible cramp in my left calf and I knew then that through all of the wonderful moments of the weekend, I was in serious trouble before the half marathon had even started. With the business of the past few days, I had failed to take care of myself enough to be ready to run 13.1 miles without the affects of my SJS stealing the best part of my race. I said nothing to anyone but my husband, who had been the one to help get rid of the cramp and went about my morning dropping off a car at the finish line, rounding up all of the people meeting at our house and heading for the start line. We took pre race photos and the excitement filled us all as we readied ourselves for a huge challenge. Some of us had never run or walked that distance before and we were giddy with excitement.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQwR4Lu0OwRXHeSP5jEZutuwkeYah3FA5vEWZSs5udjBatxILXW7ziJiXD54In6oyNwUvGVwJKi3BAPBf58LJM_qzWJVWVa5hfOOuKIl07a60Wlkd5kFgf8fNngYKCzRFrVVfa4aK1o6oi/s1600/C2CGs.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQwR4Lu0OwRXHeSP5jEZutuwkeYah3FA5vEWZSs5udjBatxILXW7ziJiXD54In6oyNwUvGVwJKi3BAPBf58LJM_qzWJVWVa5hfOOuKIl07a60Wlkd5kFgf8fNngYKCzRFrVVfa4aK1o6oi/s320/C2CGs.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: xx-small;">Cover 2 CoverGirls Book Club. Ready to leave it all out on the course!</span></td><td class="tr-caption" style="text-align: center;"><br />
</td></tr>
</tbody></table><br />
The gun went off and we were on our way. I was lucky enough to run with Kevin Carr, Jacob Berdyck and Rob Zachman while Mike ran ahead to give this half his undivided attention. This was Jacob's first half and I teased him for weeks about his training schedule. The most he had ever run at one time was 5 miles! He was sure he would beat me and I joked with him telling him that he might, but that I would be seeing him in the medical tent at the end of the race! We all laughed a lot and ran together, ticking the miles off one by one. Kevin even had my favorite songs on his ipod to keep me going if I should need it. I belted out Miley Cyrus' The Climb just for affect!!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgw5TV465U0PDlWqz9nJ1yZwZYdq77jmAmdEOg4-GShwX3uCDITGl5wvh_mdqOlF-zzTIoTpSvsBxQhKqYWXwshdCdfrUEuFzb_QSn6JepuOSfQebyMPE5xGjRXT4qxI5f8C2tARvMlG750/s1600/just+keep+running.JPG" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgw5TV465U0PDlWqz9nJ1yZwZYdq77jmAmdEOg4-GShwX3uCDITGl5wvh_mdqOlF-zzTIoTpSvsBxQhKqYWXwshdCdfrUEuFzb_QSn6JepuOSfQebyMPE5xGjRXT4qxI5f8C2tARvMlG750/s320/just+keep+running.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Kevin Carr, Kendra Schmidt and Jacob Berdyck just before mile 12.</td><td class="tr-caption" style="text-align: center;"><br />
</td></tr>
</tbody></table>I remember not feeling well at about mile 4. My stomach had already started cramping and I felt myself start to question my ability to make it through to the end. But then I saw the most wonderful thing I could have seen. Waiting for us around the bend were several Survivors with the signs they had made screaming at the top of their lungs!! They were proud of us, but honestly, I was more proud of them! They had traveled from all over the US to be here to help spread awareness and to support us through this thing! They were all the inspiration I needed to keep going.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyEBA7MwNy7KpZ8ac28SLlqCJsS3tb6HWtbJCMsOo3Rtv-V-yiX2aaxom_33PpUxFu_2_Yx3zZyO6Ki851waRTsCQk-j2wS0w0C1DGT-9j0HIw_RcyIhvmKeHCc68XPiC8XuWdUPCRCv9V/s1600/TeamSJS+cheer+squad.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyEBA7MwNy7KpZ8ac28SLlqCJsS3tb6HWtbJCMsOo3Rtv-V-yiX2aaxom_33PpUxFu_2_Yx3zZyO6Ki851waRTsCQk-j2wS0w0C1DGT-9j0HIw_RcyIhvmKeHCc68XPiC8XuWdUPCRCv9V/s320/TeamSJS+cheer+squad.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The best cheering section we could ask for!!!</td></tr>
</tbody></table>We pushed on and saw my family at mile 7. They cheered and urged us to keep going. At about mile 9, I thought for sure I was done. I slowed down to walk for a moment and felt a shooting pain work it's way through my knee. It was excruciating and I remember Rob asking if I was ok. The color had drained from my face as I worried about those next 4 miles. Did I have it in me? Did I just ask myself that question?<br />
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I started running again, although I knew my pace was way off and the thought of beating last year's time slipped away from me. I had thought that I was strong enough to beat last year, that I had worked harder and it was in my grasp, but it wouldn't be true for me on this day. We crossed the bridge in front of Theda Clarke Hospital where I had spent my first days in the hospital. I was so far from that day, but being there in that moment took me right back to that hell. With the help of Jacob and Kevin and those who were now ahead of me and those yet behind me, I put that damn foot in front of the other and just kept on. By the final mile, I knew I couldn't run anymore. My stomach was churning and my left hip and calf were screaming. I knew I had to make it around the park, past the lighthouse and then I was in the clear. Only 1 mile left!<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdA0IOEd5OXC0FXYPTmEVoak5b-qpKVsN7XV-OK_9G3CsF6lJQUGu8WC2qEoyv-3saPQUte1paomGfLcZHadekeQaoLrN54R2XjWir_8HccnrO42Rz_dzA1N0e-JRYrWN4x9YoK9Jbbl3B/s1600/Are+we+there+yet.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdA0IOEd5OXC0FXYPTmEVoak5b-qpKVsN7XV-OK_9G3CsF6lJQUGu8WC2qEoyv-3saPQUte1paomGfLcZHadekeQaoLrN54R2XjWir_8HccnrO42Rz_dzA1N0e-JRYrWN4x9YoK9Jbbl3B/s320/Are+we+there+yet.JPG" width="320" /></a></div>I walked most of that last mile and I struggled to hide my disappointment. Kevin knew. We had talked about it weeks before the race and we talked about the only thing being important today was finishing. It wasn't about beating a time on this day, it was simply crossing that finish line. With the finish line in sight, Kevin urged me to run it in. My husband was there and asked how I was doing. I told him I wasn't doing well, but I plastered a smile on my face as I looked in the stands to see another group of Team SJS supporters. They were cheering and screaming, that I knew. I looked at the clock and knew that it had beaten me this time, but next year would be different. I crossed that finish line with Jacob on my left, one step ahead of me. He did it!! He finished 13.1 miles and he beat me too! He had earned that!!<br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU2Z9iL5rs9QnvDyidZxbcZH1ElbcJ8io5csjvWzLPsFVadshf80YCZinrRw9OapXDZ1Ha9x5eXiPO6Ja9TNFgJv2mJMb9ZRge6i-0viI1w9udXuxR68GPQ3kGyx84UYUVGjNz_HPTXWcr/s1600/Je+suis+finis.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU2Z9iL5rs9QnvDyidZxbcZH1ElbcJ8io5csjvWzLPsFVadshf80YCZinrRw9OapXDZ1Ha9x5eXiPO6Ja9TNFgJv2mJMb9ZRge6i-0viI1w9udXuxR68GPQ3kGyx84UYUVGjNz_HPTXWcr/s200/Je+suis+finis.JPG" width="200" /></a><br />
As I looked ahead and saw Kevin with his dang camera in his face, I felt the strength go out of my legs. They were no longer under me and I no longer had the strength to keep them there. Red shirts surrounded me and I felt the sting of disappointment. I had trained so hard yet failed myself those last few days because I didn't do what I knew I had to do. Note to self! Next year would be much different!<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWySPaNtlUFRmNfaX2DqexOk46wnEoqBmRa3p9c-ugiYZPX-G3aZRrNNBMXOdM8Q_8CTiB1_bAgASO2uGjKv-3ifD7v-rJ1gtkLfmy1sh16cd4pwJB-4ag8IyucNSi2gfwIiJcyxFtYxc3/s1600/photo.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWySPaNtlUFRmNfaX2DqexOk46wnEoqBmRa3p9c-ugiYZPX-G3aZRrNNBMXOdM8Q_8CTiB1_bAgASO2uGjKv-3ifD7v-rJ1gtkLfmy1sh16cd4pwJB-4ag8IyucNSi2gfwIiJcyxFtYxc3/s320/photo.JPG" width="320" /></a></div>Although I was the one in the med tent and not Jacob, I was glad!!! I wouldn't want anyone else in there! Not the happiest of all places to be. But I learned a very powerful lesson that day. Not only about running, but about life in general. We all need to take care of ourselves first and foremost before we can take care of anyone else. It really is the best thing we can do for those we love. And so I will keep running because I love it and because it is mine and mine alone. Sure I may share the sport with millions of people, but those minutes, miles and hours out on the road are all mine. No one trains for me, no one pounds the pavement for me. I have to do it myself and I honestly love every painful minute of it.<br />
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It wasn't horribly long and I was back on my feet and with the rest of the Team. I actually even got to see the relay team cross the finish line. It was so exciting!!! They had all done amazingly well! My book club walked the entire half, some ran a few miles while others walked it together. The most important thing was that everyone who had started it had finished it!!! We did it!! Every one of us!! And we were greeted by our cheering sections and supporters at the finish.<br />
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This is most of the members of the 2011 Team SJS. Unfortunately we weren't able to get everyone in the picture! I think we achieved what we had set out to do that day. We raised awareness and started the healing process for some of us who have been struggling with that part of the journey. And to me, that's the biggest part.<br />
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On Monday morning, we made our way to the Queen Bee for our traditional greasy spoon breakfast. We had earned every one of those calories!!! It was amazing for me to see the friendships that had been made with not only Survivors, but my friends and family as well. We even had a member of the team go out that day and get a tattoo on her foot to commemorate that day, her first half marathon!! We all eventually had to say good bye and one by one everyone left for home. I remember feeling the let down in the quiet of my house, but I wasn't afraid like I had been the year before. I knew that this was going to happen again in 2012 and again in 2013 and so on. We may not all be here again together. There may be others here, there may be more or there may be less. But the healing that took place on that special weekend and the friendships that were made will last a lifetime. No one that shared in that day will ever forget.<br />
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As for me, I am training again! Back to running and the simplicity of it. Just running the miles. This time, I'm training for the Surf City Half Marathon in Huntington Beach, California that is taking place on February 5, 2012. I'll be running this one with my husband and my coach, Rob Hill. Someone who has helped me through more than he will ever really know! Not only my physical healing, but emotional healing as well. We'll be representing Team SJS all of the way in California and I can't wait to share it with you!<br />
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And to my fellow Survivors who were here that weekend in body and those that were here in Spirit, thank you! You save my life each and every day! Keep moving people, keep moving!! And we'll see you all again next year!!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com1tag:blogger.com,1999:blog-4358101501764629371.post-67052642066825171692011-08-30T21:47:00.000-05:002011-08-30T21:47:44.247-05:00Breath of fresh air!Well, if you've been following along through this entire process, you will know that I have struggled off and on and especially over these past couple of weeks. It seems that my recent posts are filled with doubt. It's been a true test of my mental strength and I can honestly tell you that today felt like a break through in that area!<br />
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A few of my close friends have been telling me to simplify! Back off of the pressure and stress on myself. So this morning, without even planning a route really or eating my tedious pre-longrun dinner, I laced up the shoes and turned up the tunes!! The weather was PERFECT! Cloudy and cooler, it just felt great! I grabbed some nutrition this time that my friend, Kevin, gave to me and insisted I try. I was able to take it about an hour in and I will say that I felt stronger than I have in months!!! Probably since the Bellin!! It was amazing to me!! No stomach cramps, no pain, no tightness in my chest and my legs felt like they could go forever!<br />
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I ended up doing more than 10 miles, but I know I could have gone another 4 or 5! I felt that good!!! It was the confidence boost I needed to know that in three weeks, I am going to pull this off. And I'm going to enjoy it! Every moment of the entire weekend!<br />
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Can't wait to share this year's race with you! I want to thank all of my friends and family for the love and support over these past months of training! Can't wait to celebrate when it's all done and over with!! It's getting close now and the excitement is building!!! Woo hoo! Let's go!!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com1tag:blogger.com,1999:blog-4358101501764629371.post-14957680123312584382011-08-09T16:14:00.000-05:002011-08-09T16:14:09.584-05:00It's only Fair.I shared with my dear friend, Renee, this weekend while we were camping that I have lost my way over the past few weeks. My training has slowed to almost nothing as everything has begun to pile up on top of me. I have a tendency to allow things to get to a point that I can no longer carry them and so I set them down. And sometimes picking them back up is nearly impossible.<br />
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So I told her that I have been trying to figure out if writing this here in my blog would be good or detrimental. If it would help me or help others who may happen to read it. As I was talking to Renee, her supportive head nods, looks of understanding and mm hmms, I realized that by not sharing what I was struggling with I was robbing myself and others dealing with healing, in whatever fashion that may be, of knowing that ups and downs are there for each and every one of us. That it really wouldn't be fair to not share it. And so, here I am. Spilling it all out on the page, trying to refocus, learn something, get it all out there and maybe, just maybe give someone else a moment of relief from the fears and anxieties that they too may have. I wrote earlier that my goal for this year was to find a balance between running and organizing the SJS events surrounding the half marathon. It seems to me that I have lost that balance. <br />
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On our last night of camping, my husband and I sat around the fire well after the boys had gone to bed. You know how the colors and the heat from the fire can be so mesmerizing? I finally began to think about what it is that I am actually trying to accomplish. If you don't stop and think about it and simplify it all, it will begin to consume you and that is what has begun to happen. Plans for the pasta dinner, getting people housing if they need it, asking for donations, ordering team shirts, getting registrations turned in for people, raising awareness, answering questions, interviews, speeches, and so on. It's a big job! And then the training comes in. Making sure you have the right shoes, eating the right things to prevent further issues, hydrating, following the schedule, putting the shoes on, mapping the routes, keeping track of the miles, actually running them. Fighting the voice inside your head telling you to run faster, slow down, run farther, that short runs are as important as long runs, don't forget to run hills, do this, do that, don't do that!! It never stops.<br />
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I shared all of this with Mike, afraid for some reason that he would brush it off. Tell me I'm overreacting or something similar. But I was so relieved when he didn't. Instead, he told me to tell him what he can do to help. Relief began to wrap itself around my shoulders and it shoved the weight right off and onto the ground. He told me to remember that the most important part of Team SJS is the healing it provides to those who have suffered and that includes the ones that love them. Raising money and awareness are necessary parts, but that isn't what my original goal was. And he was right!! I had forgotten what it was I was doing! <br />
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Now, if I had just gone back through my own writings and rantings I would have seen it for myself! I would have seen that I have always found it to be so important for people who have had SJS or TENs to realize that although life is different, it isn't any less great! That we can do things that amaze ourselves and others and feel good about that! It just might be the reason we are still here!<br />
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The next morning, I was feeling a bit less pressure, but being the non-morning person that I am, I was CRABBY!!! The answer to that was an easy one. I changed my clothes and put on my shoes prepared to run 5 miles. I needed to sweat out the negativity, needed to breath in the clean and the fresh and push myself past a comfortable place and see myself go farther than I believed I could. To set a goal and nail it, even though it was a distance I had run so many times before. So I did! And did it well!<br />
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After talking to Jim, my coach, I am back at it and feeling pretty good. We have just under 6 weeks to go until the big weekend, but I am on this up and down journey for the rest of my life. I'm facing an 11 mile training run with my fellow running group on Saturday. Scared yes, but knowing that I am not alone in it. Just as I have learned through my illness, I am never really alone. I have made life long friends and I have an incredible husband who is there through it all. Two boys that love me, with or without my disabilities. And numerous family members and friends who know that I am still who I was before June 28, 2008. I was a spirited fighter then and continue to be now. <br />
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As most of you know, music is a huge part of my life. It heals, it comforts, it conveys anger as well as love and sometimes it gives you a voice you never knew you had. There's a song that I sometimes listen to when I feel so lost, so angry, or so alone. Written by Audra Mae, it goes like this:<br />
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<div style="text-align: center;">Who I Was Born to Be</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">When I was a child</div><div style="text-align: center;">I could see the wind in the trees</div><div style="text-align: center;">And I heard a song in the breeze</div><div style="text-align: center;">It was there singing out my name.</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">But I am not a girl</div><div style="text-align: center;">I have known the taste of defeat</div><div style="text-align: center;">And I've finally grown to believe</div><div style="text-align: center;">IIt will all come around again.</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">And though I may not</div><div style="text-align: center;">know the answers</div><div style="text-align: center;">I can finally say I'm free</div><div style="text-align: center;">And if the questions</div><div style="text-align: center;">lead me here, then</div><div style="text-align: center;">I am who I was born to be.</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">And so, here I am</div><div style="text-align: center;">open arms and ready to stand</div><div style="text-align: center;">I've got the world in my hands</div><div style="text-align: center;">And it feels like my turn to fly.</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">And though I may not</div><div style="text-align: center;">know the answers</div><div style="text-align: center;">I can finally say I'm free</div><div style="text-align: center;">And if the questions</div><div style="text-align: center;">lead me here, then</div><div style="text-align: center;">I am who I was born to be.</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">When I was a child</div><div style="text-align: center;"> There were flowers that bloomed in the night</div><div style="text-align: center;">Unafraid to take in the light</div><div style="text-align: center;">Unashamed to have braved the dark</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">And though I may not</div><div style="text-align: center;">know the answers</div><div style="text-align: center;">I can finally say I'm free</div><div style="text-align: center;">And if the questions</div><div style="text-align: center;">lead me here, then</div><div style="text-align: center;">I am who I was born to be.</div><div style="text-align: center;"><br />
</div><br />
Through all of this, the ups and downs, the failures and the triumphs, the pressures and the stresses, this is who I was born to be. A mother, a wife, a friend, a daughter, a sister, an aunt, a runner, a support and yes, a Survivor. Sometimes even a pain in the ass! God don't make no junk! Here we go, people! Le's get this thing done!!<br />
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sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com2tag:blogger.com,1999:blog-4358101501764629371.post-22456496817450946792011-07-01T18:26:00.000-05:002011-07-01T18:26:18.650-05:00Winner, winner, chicken dinner!!Last weekend, Mike and I were asked to speak at our local running store, Fleet Feet, to a group of runners about midpack running as well as my experience with SJS. Mike was great! He talked about his own marathon and half marathon experiences, what he has learned over the past ten years that he has been doing it as well as tips for how to dress, not trying GU for the first time during a race, keeping track of miles on your shoes and running your own race. He made us laugh, made us think and honestly made me proud! That there was my "coach" telling everyone all of the things he had shared with me, the things that have gotten me to where I am today.<br />
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And where am I today, you ask? Well, I'm sitting on my back deck, watching our son play in the pool, hydrating with my very favorite, Rain Berry Gatorade, freaking the heck out about tomorrow!!! All because Mike and I are sitting at Fleet Feet last Sunday listening to the owner of the store talk about this half marathon training team that has just started. There are beginners and intermediate runners in the group and it's led by a coach. My ears perked up a little, since I have thought time and time again about how nice it would be to just have someone tell me what to run and I would do it! How it would be great to get to run with other people on those long runs to help keep me motivated. So Leah asks us if there is anyone in the group that would be interested? Mike gives me a jab in the ribs and mumbles to me to raise my hand. Ok, so I had thought about how nice it would be to just do the workouts, have someone to run with, blah, blah, blah, but I had gotten myself a really good system down! I was staying motivated all on my own, although somedays were a little tougher than others, getting my runs in, watching my nutrition and hydration and keeping track of my miles, times and training schedule. So I really wasn't in need of a new coach, I had me! Well, that's when I felt my dang hand shoot right up into the air! What the heck??<br />
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Hoping that no one had seen it was useless, Leah had and said as much. She then announced that she was going to raffle off one free entrance fee for the training program. Holy cow!!! For another brief minute, I thought how awesome that would be. Having a coach, other than your husband who has been running longer than you, is expensive! Really? Who gets to do that? Not this girl!!! Heck, I cringe every time I get close to 300 miles on my shoes and I have to break down and buy new ones. With the medical bills we see come through our mailbox, luxuries like that just aren't a possibility. <br />
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The group was told to think about it throughout the seminar and she would ask again at the end. And at the end, Leah, did ask if anyone else was interested. I scanned the room, noticing that there were quite a few women there and that some of them were already in the program. They had just done their first long run the morning before. As I waited for someone, anyone, to raise their hand to get a chance to win this incredible prize, no one did! What?? Are you people crazy? This is big time stuff, people! Someone to help push you when you need it, someone to see your potential when you can't, a person you can ask any running or injury related question to! What is wrong with you? Raise your hands...so I'm not the only one! Because then I would have to run whatever he told me to run and that includes some big hill they have named after my Lord and Savior, Jesus! And honestly, that scares the hell out of me! <br />
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And wouldn't you know it, I was the lucky winner!!! Again, I never win anything. Not even BINGO in French class! Not once! But it was my lucky day to get to be able to join a really great group of people in this journey to the finish line. I really am very excited about it and I have done all of the runs Jim has scheduled for us this week. Even my very first hill workout. I had never done hill repeats, and honestly, I now know why! They are hard work!!!<br />
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And that is why I am freaking out, sitting here the night before our 6 mile run early tomorrow morning. Jim's gonna push me. He's going to make me work harder than I have made myself thus far. I have challenged myself and asked myself to do things I never thought I would be able to do, but we all get to that place where we think we can't go any farther when in actuality we can. Whether it be about the simplicity of running or the complexity of every day life, we stop and teeter on that little line we have drawn in the sand for ourselves wanting to step over it, but allowing the fear of the unknown to hold us back. <br />
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This is my chance to get to see what I am really made of. Yeah, I ran 13.1 miles last year and I am proud of that! Will always be proud of that accomplishment. But now, I am ready to go further. I am ready to be stronger. I am ready to be pushed. Let's just hope it's not off a cliff!!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-45506260636817002022011-06-12T13:46:00.000-05:002011-06-12T13:46:27.632-05:00Is it in you?Yesterday was the biggest race I have ever been in! Over 18,000 runners and walkers lined the streets of Green Bay for the Bellin 10k. 18,701 to be exact!! My good friend, Renee, had asked if I wanted to do this race and I was honestly taken aback at first. I asked her if she realized that this race was 6.2 miles long? You see, Renee started running just last summer for the Fox Cities 5k as a member of Team SJS, and she had told me then that she wasn't sure she could do it!! She trained diligently and struggled emotionally with the "But if I walk, I'm not really a runner" mind game that we all play with ourselves at one time or another. Well, she did that 5k and nailed it, just like I knew she would!!! And then, she ran another 5k this spring in the rain, sleet, cold, thunder and lightning!! This time, I ran it with her and the fact that she even showed up told me that this woman was serious!! I have to admit that she did do a little whining along the route about the crappy weather, but hey, who didn't? Had she not been running it with me, I wouldn't have even thought of doing that run! It was miserable!! <br />
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So yesterday we rode to Green Bay together, ready to tackle the Bellin. Renee shared with me her goals for the race. Her C goal was to do it in 1:20:00 and to run more than she walked. Her B goal to finish and her A goal to not need medical attention! I laughed at that one!! I shared with Renee that my one and only goal for that day was to break my PR of 1:14:58 from last year's Otto Grunski 10k. It had been my first 10k ever and the day hot and humid! My stomach was cramping, I was dehydrated and sick and the race was terrible. I wanted to run this race with strength and speed and to not have to deal with the dreaded stomach issues that had plagued me the entire season last year. I was nervous, anxious and a little afraid. Afraid mostly that my body would once again fail me, even though I had worked so hard to get it read for this big day.<br />
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We hugged Renee, took pictures and wished her luck before saying goodbye at her corral. Mike stood next to me on the other side of the fence in Corral 4. It was a little strange to have him there in street clothes and not running this one with me. I was on my own to tackle this beast! There were people as far as I could see, which always makes me think about the possibility of tripping over someone's feet if they cut me off from the left side, my blind side. I couldn't imagine going down and hitting the pavement with thousands of runners and walkers still behind me. I knew that it would cause a domino affect and that I wouldn't be the only one kissing the pavement if I wasn't aware of who was around me. And normally, in any given race, the beginning is tight, but then people pretty much spread out over the course. But not this one, not with 18,000 of us running at the same time, in the same direction. This one was gonna be tight the whole way through.<br />
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After the standard speeches, National Anthem and introductions, the gun apparently went off. I don't know, I was so far back in the pack I never heard it. The masses began inching forward and closer to the start line. It took about 10 minutes for us to get there, but eventually we were off! My headphones singing in my ears, I stepped lightly and held my left arm out away from my body just enough to give myself a cushion from anyone who may bump into me. I may not be able to see them, but I was damn well gonna know they were there! <br />
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It took awhile to get comfortable with all of the people, my breathing, the constant distractions. There is something truly amazing about those quiet training runs when you are all alone and able to think of only the things you choose to think about. This time, I had to fight with the white noise to get into the "zone." I eventually got into a rhythm and at mile three, I knew I was clipping at a good pace. I had figured out that I could definitely do a 1:07 if I stuck to an 11 minute pace. My watch was showing me 10:22 for the first mile and 10:42 for the second. I knew that if I just stayed where I was and settled in, I was going to do it. Mile 3 had a huge downhill and I thought for sure I was going o go head over heels on that one! But when I checked my watch, it was a 9:54 and I knew that these last three miles were gonna have to be steady. <br />
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By the time I reached mile 5, the burning in my legs began and I could feel myself wanting to slow down. I was pushing myself to the limits and I had been afraid to do that for a very long time. I have had this fear of my body failing me ever since the SJS. Primarily because it has! My eyes have failed me, my feet have failed me, heck even my fingernails have failed me! Loss of vision, nerve damage and atrophy, damaged vocal chords, scarred lungs, ugly skin and the loss of finger and toe nails all made me believe that my body was no longer as good as it used to be. That it was damaged and I would never be good at anything again. I had been doubting my own abilities and my own potential to do things I had once been good at as well as things I had never done before. It was at that time I remembered Emilie's blog about fear. If you remember, I just met Emilie through her blog this past week. An SJS Survivor herself, she is competing in an Iron Man on the 26th of this month. She wrote about digging deep to realize what your true fears were and breaking them down to minute pieces where you can dissect them and overcome that fear one piece at a time. As I remembered that, I realized that there are so many runners out there with obstacles much bigger than mine that do incredible things. In fact, Sarah Reinertsen, an above the knee amputee and Iron Man, was running this same race! She was more than likely already finished!! I wasn't slowing down now!<br />
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I pushed through the remaining 1.2 miles, realizing that I was going to finish way earlier than 1:06!! I began to panic a bit wondering if Mike was going to be there. He wasn't expecting me yet and I wanted him to be there! I needed him to be there! I ran passed the band that was playing, heard the cheers from hundreds of people lining the street and made the final zigzag to the straight away for the finish line. I scanned the crowd for Mike, but didn't see him yet. The finish was getting close...where was he??? And then, like magic, I heard him yell my name and I looked up to see him holding the camera, waving his hand, and smiling his big smile. He gave me a thumbs up and I knew he realized I had just smashed that PR! Killed it, by nearly 11 full minutes! Officially, I had finished the Bellin 10k in 1:03:52. I had done it, and surprisingly enough, my "failing" body was still in tact.<br />
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We watched Renee as she sprinted across the finish line! She looked strong and absolutely amazing! Supporting Team SJS once again, she was wearing her team shirt. I felt a lump forming in my throat and realized how proud I was of her and her incredible accomplishment and the gratitude that I had for her willingness to put that shirt on and run those miles in the name of friendship. Yes, she did that race for herself, I know that, but she also did it for me. I realized what an amazing friendship we have, and I'm holding that close to my heart forever. So Renee reached her goals as well! She finished that race in 1:19:19, beating her 1:20 mark. She ran nearly the entire thing and, best of all, she didn't need ANY medical attention!!<br />
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So here's my question to you, the reader. What is it in your life you really want? Is there a fear that is holding you back? If so, what is it? No really, what is it? And is that fear worth giving up what it is you are dreaming of? Is it really? I didn't think so. So the next question is, is it in you? I'll bet it is.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVV8a6l3bp1CVvcISE6btL2XQgpCu657z_taQfKnd4D-V3Ao8k2z4B87yvMDeRf6R0B5YLvBae5aGl3RWdnVm-HUTi4vUfZifWvufs0bFb38LJBGoeYJKJZ68I6GK0c5PgJ_hxIgrOuqhF/s1600/S5038313.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVV8a6l3bp1CVvcISE6btL2XQgpCu657z_taQfKnd4D-V3Ao8k2z4B87yvMDeRf6R0B5YLvBae5aGl3RWdnVm-HUTi4vUfZifWvufs0bFb38LJBGoeYJKJZ68I6GK0c5PgJ_hxIgrOuqhF/s640/S5038313.JPG" width="480" /></a></div>sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com2tag:blogger.com,1999:blog-4358101501764629371.post-61912882546040321282011-06-09T10:18:00.000-05:002011-06-09T10:18:15.034-05:00Yep, still running!!An amazing things has happened because of this blog!! In the past week, I have met 2 other SJS Survivors!! One, of which, was just recently released from the same Burn Unit I was on in Milwaukee!! We share the same doctor and favorite nurses! Some people may say that it is not that amazing, but when it is perceived that you'll never meet another Survivor in your lifetime because it is "so rare" the fact that you live only hours apart makes it a little bit incredible! He is doing well, by the way, other than the emotional part that goes along with a trauma such as this. The fear, the anger and disbelief we have all felt!! And, rightfully so, if you ask me! <br />
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And then, to top it off, I did a little searching and found yet another Survivor who has her own blog! What is truly incredible is that she is doing an Iron Man at the end of this month! That's right, an Iron Man! 2.4 mile swim, 112 mile bike and a 26.2 mile run!!! Unbelievable!!!! Can't wait to actually talk with her and cheer for her all of the way from Wisconsin! She's a few states away, but I can be pretty loud!!!<br />
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I will let that carry me through Saturday's 10k. Knowing that there are yet another two people who have fought the same illness and won will be on my mind for those 6.2 miles. It'll be the longest race I have done since last November, and I hope the weather is as perfect as they say it is going to be. No rain in the forecast and cooler temperatures than normal. Yesterday, it was in the 90's and today we have a high of 66 degrees!! My times have continued to drop and I am so much stronger than last year. I am eating much differently and seeing some positive results in how I feel after long runs. I haven't had one day that has ended with hours on the couch or in the bathroom! Now, that's a positive!!<br />
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I'll let you know how race day went! And will keep you posted on the rest of training season. I have taken all of my scheduled triathlons off of the calendar this year. I am focusing on the run and I think that is a good decision for me at this point in time. I'm seeing progress, so I'm going to keep working at it. I am doing the Dirty Girl 5k in August, however! My only fear is getting over that dang wall!! I hope my teammates are ready to make a human pyramid so I can reach the top! That may need to happen!!<br />
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Happy running everyone! See you at the finish! sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-38249522481012001252011-05-05T11:20:00.000-05:002011-05-05T11:20:36.417-05:00Just Breathe!I am coming to the realization that this year's half marathon has become way more than running 13.1 miles! So much has happened over the past few months and it has become a whirlwind of a life I lead!! We have gone from 4 Survivors and their loyal supporters and fans to 9 Survivors coming from two different countries!! We're getting corporate sponsors, doing fundraisers, like selling SJS bracelets and Stevie B's pizza buffet cards, I'm doing speeches and planning a pre-race dinner. It has been amazing thus far!<br />
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But I have to say that the simplicity of training for the half last year is something that I continually long for as the weeks get closer to race day. When I think back to last year, it was all about the excitement of running farther the following week than I did the previous week. It was about going to a place I had never gone before and the pride that came with that was staggering! The only thing I could control was whether or not I put my shoes on and whether or not I pushed through when I felt like quitting. I used my training runs to clear my mind and enjoy the solace of the moment. I had a much easier time remembering where I had been a year before and honestly, amazed myself at times. How far I had truly come!!<br />
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As exciting as this big adventure is this year and how wonderful that we are doing great things in the name of awareness, love and support, I have set a new goal for myself this year. My goal is to find a balance between last year and the ultimate goal of raising money for the Foundation and raising awareness of SJS. I don't want to lose myself in the process of all of this. I need to remember my favorite quote of all time! "I am not what happened to me, I am what I choose to become." - Carl Jung <br />
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So here's to another day of not getting lost, of taking the time for me to get my training in and to clearing my head!!! Here's to being a vehicle to allow the healing process for Survivors and family members!! Because ultimately that is the most important part of all of this. Raising awareness is great and definitely necessary, but moving forward is inevitable and doing it with grace and dignity is the best thing we can do for ourselves.sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com3tag:blogger.com,1999:blog-4358101501764629371.post-6231080746741380082011-04-04T10:50:00.000-05:002011-04-04T10:50:10.321-05:00The point?I have been sitting here this morning, drinking my coffee, checking emails and Facebook posts, as I like to do every day trying to get the energy up to get on the treadmill and put a few miles in. The gloomy day has me feeling a little bummed out and wanting to sit all day in my bathrobe curled up on the couch, but in a few hours I have to get to the salon for another day.<br />
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As I'm reading everyone's Monday morning posts, most sounding a lot like mine: not wanting to get out of bed, not enough coffee in the world to get moving, tired of the crummy weather, and on and on, I come across yet another one of Jean McCawley's (founder of the Stevens Johnson Syndrome Foundation) desperate requests for prayers needed for another case of SJS. It's the third one in two days!! She asked for prayers for Giovanni, a 3 year old from Sacramento, an 18 month old from Boston and this latest, a woman from Tampa who is in critical condition. My mind races back to the snapshots in my head of my own experience, what I can remember anyway. It shakes me from the core and I am immediately filled with fear for those families and patients, knowing that they have no idea what just hit them!<br />
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The anger builds in my chest and the frustration grabs me by my soul! Angry that it is most likely these people were not warned of the possibility of SJS/TENs, that our government does not have a mandate that physicians report cases of SJS so that we have accurate numbers of people affected by it. Frustrated that I know there is a need so huge to get more information out there about this illness, that just because you survive the acute phase doesn't mean that you will not suffer in one way or another for the rest of your life, that I can't do more. At least, not right now. <br />
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I have found that I have a strong need and a desire to do something to help, but I don't know what and I don't have the resources to just start Foundation or Non-profit organization. And even if I did, what the hell would I focus on?? There's just so much to battle that it is all incredibly daunting. <br />
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So I sit and wonder, what is it that God spared me for? What is it that You want me to accomplish in this life? Did you keep me here for my husband and kids, as my husband truly believes, or is it for them and also for my fellow Survivors? Is it to get the word out about SJS? Is it to urge our government to make some changes? Am I supposed to aid in research by raising money? Or is it to help heal those who have suffered through my words, love and support? I don't know!! I can't hear what You are telling me and I am wasting time! Three more of Your children are suffering today. Dear God, why can't anyone hear those of us screaming from the rooftops? <br />
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Will I ever know what it is I am here for? Will anyone ever truly hear me? Dear God, I hope so.sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-43161717882522030292011-04-03T13:06:00.001-05:002011-04-04T10:15:47.848-05:00Starting Over Again!It's been a long time since I dared show my face on here! First things first, I had to make a big decision regarding the half iron man! And that decision was that I am not yet ready for a task as big as that one!!! I hate to admit that, but it's true. My body, mental status and life are not at a place that I can commit to something as intense as that! Don't get me wrong, I loved training for it! I enjoyed the first three weeks until the chlorine in the pool started wreaking havoc on my skin, and that was just the first sign that I am not ready. I give so much more credit to those who are able to tackle such a feat! I had no idea what really, truly went in to training for that, but I understand now and am all the more amazed! So, I will be putting that off for a year or two. When I'm ready, I'll know and enjoy it all that much more!!<br />
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So now, I am refocusing my energies on getting physically ready for the summer running season. This winter was tough, and apparently the winter is not yet over! The first 5k race of my season was this morning and we battled rain, sleet, snow, puddles the size of lakes, wind, thunder and lightning! Yup, thunder and lightning! Temperatures were near 38 degrees, but by the time we were done, I was sure my toes were rolling around on the inside of my water logged shoes!! I can honestly say, it wasn't pretty!!!<br />
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So now, it's time again to pull back and just put in the miles. Yesterday, I ran 3 miles and realized how much work I yet have to do before September. It was a great run and I really enjoyed the process. Controlling my breathing, paying attention to my form (which is all wrong, but at least I'm upright), and the enjoyment of knowing I only had to be responsible for myself for that 3 miles. No kids, spouse, dog, dishes, laundry, cooking. And that is what I enjoy the most about running anyway! It's quiet!!<br />
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So here's to another fantastic season of outdoor running!! Am just so hopeful that spring gets here soon!! Happy running everyone!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-41506835383009482272011-01-30T19:09:00.000-06:002011-01-30T19:09:19.247-06:00There is nothing to fear, but fear itself...and your first half iron man!So I saw that my friend did her first day of half iron man training today. She had shared with me the 20 week training program that she and her friends had used in the past and I thought it was a little more detailed than the one I had. So over the past couple of weeks, I had been thinking about it and counting the weeks until that training schedule would finally start. Well, HERE IT IS!! This is the week! And I have to be honest with myself, I am SCARED AS HELL!!! What the hell have I gotten myself into and why in the world would I ever think that I could do this?<br />
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I printed off the 20 page schedule and am now sitting here staring at it! Like it's going to jump off the desk and smack me in the head or start yelling at me telling me I am an idiot for thinking I could ever complete the details on each page. It's daunting to think about the next 4+ months of biking, running and swimming 5-6 times a week. There are even days where there are more than just 1 workout scheduled! How am I going to fit this in with everything else in my life? Ok, so my life isn't all that incredibly exciting or busy, but I am a working mom!! That and I like to sleep! There's just no getting around the fact that I hate mornings and getting out of bed plain ol' sucks!<br />
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Ok, so the first day (tomorrow) is a 40 minute easy paced run. That's cool!! For me, that's about a 3.5 to 4 mile run. Great! I can do that! Then, it's also a swim day! Warm up with a 200 yard swim (8 lengths of the pool), 200 yard kick, 200 yard pull (not even sure what the heck that is), and a 200 yard swim. Continue with a 1 x 1500 swim (60 lengths of the pool). And of course, cool down with 4 x 50's, each slower than the last. GREAT!!! Not a problem! I can do that! WHAT???? Are you kidding me?? That is a total of 2500 yards! On the FIRST day!! That's more than 2 miles in the pool!<br />
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I can already hear Mike, "I love you, but you are crazy! You can't possibly do all of this training program! It's not possible. OK, it's not impossible, but it is inhumane! You're gonna die!" All out of pure love, of course. And he would be right! I am crazy, it is inhumane and I am gonna die! Yep, that's all there is to it, I am going to die!!<br />
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Alright, what is day 2 you ask? Oh, here's an easy one!! Run for 30 minutes and then bike for 60! Hey, that I might be able to do. But, since I can't get outside and I don't have a trainer, I'll have to get on a bike at the gym. Not quite the same as the real deal, but ok I'll just have to deal with that. Wednesday we're swimming again, but this is apparently a short day. Only 1,650 yards today! Thursday is an easy 60 minute run. Friday we're back in the pool and on the bike and Saturday is an OFF day!!! Well, thank God for that! And on Sunday, it's a 90 minute ride!<br />
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So now I'm doing some deep breathing trying to stare down the 20 page packet from hell! Telling myself that if I really want to quit, I can! I can quit before I even start. No one's going to judge me for changing my mind and no one is going to think I'm a wimp for backing out gracefully. Well, no one but myself, that is! I can't quit now!!! Jeez! It's a guideline, an intimidating guideline, but a guideline. I'm not going to do every workout. I'm not going to succeed at every swim, bike and run. But quitting now means that I have failed all of them and that's just not ok with me. So, here's to Week 1! And guess what, if I break it down, day by day and workout by workout, all I really have to do is put one foot in front of the other! Hmmm...have I been here before?sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-79005336633548723442011-01-27T14:49:00.000-06:002011-01-27T14:49:53.594-06:00Inspiration for the Long Haul!<iframe allowfullscreen="" frameborder="0" height="295" src="http://www.youtube.com/embed/ARkxnRbyR1c?fs=1" width="480"></iframe><br />
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I have been listening to this song since the album came out this past fall. Mike put the album, Incredible Machine, on my ipod and I played it over and over on those long runs. It made me think so many times and wonder who it is that Jennifer and Kristian were trying to communicate this message to. After awhile, it no longer mattered, because they had spoken directly to me!<br />
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I have been a HUGE Sugarland fan since the first time I heard Jennifer's pipes belt across the radio waves. Her quirky accent intrigued me and the messages they brought through their music always made me stop and think. I was able to experience them at Country USA the weekend I got sick with SJS. Kind of hard to think about now, but only days later I would be fighting for my life instead of jamming at a concert! They played on that opening night and I was sure life couldn't get much better! I think I sang so much and so loud that I was hoarse the next day, but I didn't care.<br />
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Mike told me that my friend, Carrie, who was with us that weekend bought their latest cd and gave it to Mike for me. During the months that I was unconscious, Mike played that cd over and over again for me. And when I finally was out of the fog of the medications and awake again, I asked the nurses to play it for me to help calm my intense anxiety attacks. It may sound weird, but Sugarland has done more for me than just make great music.<br />
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And now, they have done it again. They're asking me to stand up for what I am passionate about. To use my voice to educate others on what I already know so that maybe we can prevent this from happening to someone else. To all of my Survivor friends, this is our anthem! We don't always have great days and nearly all of us have limitations from this illness, but you and I know we can still Stand Up! We can all use our voices! Maybe, just maybe that is why God spared us. Maybe that is why we endure what we do every day, because that is what we are supposed to do!<br />
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Won't you stand with me?sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com1tag:blogger.com,1999:blog-4358101501764629371.post-66978643793913957952011-01-25T18:40:00.000-06:002011-01-25T18:40:35.488-06:00Ok, so what's on the schedule?!I decided today to take a look at my race calendar for the year. There are so many awesome events and I keep hearing about more and more of them, getting me excited to sign up for as many as I can. However, I am not one of the elite runners who can make a living at this, so I have to limit myself so I don't go broke! With the way the cost of these races have continued to increase over the years, it would be easy to do. <br />
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So as of right now, here is my schedule of events!<br />
May 7, 2011 Sole Burner 5k - Appleton, WI<br />
June 4, 2011 Dam to Dam 20k - Des Moines, IA<br />
June 18, 2011 High Cliff Half Iron Man - Sherwood, WI<br />
August 6, 2011 Otto Grunski 10k - Menasha, WI <br />
August 7, 2011 Oshkosh Triathlon - Winneconne, WI<br />
September 18, 2011 Fox Cities Half Marathon - Menasha, WI <br />
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Like I said, that's my list as of today! I'm sure it'll change as the year goes along. I'm just hoping to train safely and go another year uninjured!! So far, training is moving along. I'm rebuilding, and so my "long runs" have been at 4 miles. This week, I am supposed to put in 5 miles as my long run. It has been difficult to get all of my training days in between work and the weather, but I'm hanging in there.<br />
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I have had a few exciting things happen over the past few weeks. Several high school friends have shared with me that they are getting into running and exercise! I am so happy for them and some of us are planning to do the Sole Burner together. I've also had some other friends share with me their weight loss goals and the progress they have been making. It is so wonderful to see the people I care about put themselves back on their own list of important people! It's exciting to watch and to be able to be a support to them if ever they need it. And today, I sent out the official invitation to all of my friends for the Fox Cities Team SJS! Can't believe it's that time again!<br />
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So that's all for now. Focusing on another year of events and raising awareness with every step!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0tag:blogger.com,1999:blog-4358101501764629371.post-75103216794261455252011-01-02T21:13:00.000-06:002011-01-02T21:13:12.872-06:00New Year's Resolution and a new year of goals!So this is the week that triathlon training begins for me. I have my professional plan all mapped out for the next 12 weeks and then another plan for the last 12! If perfectly executed, it will take me right up to race day on June 18th. My training journal is all put together and I'm set with new running shoes, insoles, swimming suit and goggles! It will be months before I can take my training outside, but for now I'll do the work I need to do in the gym.<br />
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It's amazing to me how anxious I'm feeling already! It isn't like this is the only triathlon I've ever trained for or done! Of course, it's the longest and definitely will be the hardest, but hell I've got nearly 6 months to get ready for this day! Maybe it's just the loneliest event I will ever have trained for. It's not easy doing something like this when people think you're crazy and have very little understanding of why it is I would choose to do something of this caliber. My mom even made comment tonight that she "doesn't want to see me start this again." Kind of made me chuckle when she said that! She knows it means the world to me, but watching someone you love work so hard and push themselves to the brink can get a little tiring after awhile. I get it, Mom! Sorry!! But I hope you'll be there that day!<br />
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I've got some other events on the calendar this year other than the triathlon. I plan to nail that half marathon once again along with the rest of Team SJS. We're trying to get as many Survivors as possible here for that weekend so we can all meet in person and share in the healing of each other. My big brother, my husband and I are thinking of running the Dam to Dam 20k in Des Moines, IA in May and of course, I have my standard 5 and 10k's. I run the American Cancer Society Soleburner 5k in memory of my best friend, Heather, as often as I can. This year, my 10 year old is running it with me! What an amazing day that will be!<br />
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I hope everyone has a wonderful new year and that you choose to set goals for yourself in whatever area of your life you find the most important. Surround yourself with positive people and truly know that you are worth it, no matter what "it" is! Let's dream big this year and do things we never believed we could! I just bet that if we hang in there, get serious about it, put one foot in front of the other with a little focus and determination, we just might blow our own minds!sjssrvvrhttp://www.blogger.com/profile/15082817375602984496noreply@blogger.com0